Help me support cureCADASIL on #givingtuesday

My name is Ginger Tucker, I am 47 years old and I have a rare genetic, incurable and un-treatable brain disease called CADASIL. I was born with it, however, my symptoms did not manifest until I was in my 30's. My first introduction with CADASIL, unknowingly at the time, was while I was working in an office and suddenly I began having stroke symptoms. My face and hands began to tingle, my vision became impaired and I became very confused and noticed my speech becoming jumbled. I really do not even know what I was saying to the callers. At that time, I had no insurance so I went to a local PrimaCare Urgent Care Facility and was told I had a migraine. For the next ten years, this did not happen again. The last few years I had episodes in which I could not get out of bed my fatigue was so bad but I had no idea why I was even tired! I would be driving a regular route and suddenly nothing would look familiar and I would panic because I couldn’t remember where I must have exited. After a bit, things would start looking familiar again. There were other times in which my balance would be off and I would just run into walls or I couldn’t figure out the simplest task but then the next day would complete the task with ease. Then on a particularly stressful day at work the same symptoms that I had years before began again. This time I went to the emergency room which prompted CT Scans, MRI's, MRA's, genetic testing and finally the CADASIL diagnosis. There are many symptoms including Strokes, Migraines, TIA's, Fatigue, Memory Loss, Dizziness, Balance issues, Progressive Dementia and more. This disease has been misdiagnosed as MS, Alzheimer’s and other neurological diseases and has only been correctly diagnosed since 2000 so little is known about CADASIL. This is why your help is needed. Most Healthcare Professionals do not even know what CADASIL is as it is so rare and so often misdiagnosed.  Since my diagnoses in 2015, my research has led me to  cureCADASIL.  I have volunteered for the organization and also have been fortunate enough to be able to talk with others that have the same difficulties and questions about this disease that I do.  CureCADASIL is dedicated to finding a cure.  In closing, I would like to ask for your help in supporting the organizations mission to cureCADASIL!!!!